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Emory Neurology Database

Our database, established in the late 1990s, retains extensive clinical information about study subjects recruited by our Alzheimer’s Disease Research Center Clinical Core as well as the many other individuals with neurological diseases seen in the Neurology Department over a number of years. As of March 2009, there are roughly 6,400 subjects in this database who have a specific research or clinical diagnosis and who have volunteered for research. There are another 1,000 subjects whose records are currently under review for inclusion into this database. The table below shows the breakdown of the diagnoses.

Diagnosis Number*
(Total = 6414)
Percentage

Control**

1401

22%

Possible Alzheimer’s disease

250

4%

Probable Alzheimer’s disease

1000

16%

Mild Cognitive Impairment (MCI)

329

5%

Frontotemporal dementia (FTD)

155

2%

Vascular dementia

59

1%

Other dementia

42

1%

Lewy body disease (LBD)

75

1%

Parkinson’s disease

607

9%

Other movement disorders

268

5%

Amyotrophic lateral sclerosis (ALS)

347

5%

Stroke

541

8%

Sleep disorders

612

9%

Other diagnoses

728

11%

* Includes subjects recruited for the National Alzheimer’s Coordinating Center (NACC)
** Control subjects self-reported no history of neurological disease; the great majority had Mini-Mental State Exam (MMSE) data indicating no cognitive impairment; a subset of these subjects have had a full neurological work-up.

In addition to clinical information, we collect basic demographics, medical history (including risk factors such as smoking), and a detailed family history from all of these subjects. Vital status is available through the end of 2004. For many we have some neuropsychological measures; most have an MMSE and clock drawing test, for example. The majority of subjects in our database have only one visit. However, about 1,900 of the roughly 6,400 subjects have been or are being seen longitudinally. At each visit they complete some neuropsychological testing and a neurological exam, as well as an interview to capture new medical and family history.

There are over 2,500 variables in our database, not all of which are available for each subject. To facilitate data use for research, we have put together a Summary Database which contains about 150 of the most commonly requested variables. A data dictionary describing the variables in the Summary Database is available.

Investigators interested in getting more information about the Emory Neurology Database should contact Lenora Spencer at lspenc3@emory.edu. If you would like to request some of these data for research studies or would like to contact some of these subjects for possible participation in other research studies, please fill out the appropriate request form and email it to Lenora Spencer at lspenc3@emory.edu.

In addition to clinical information, we collect basic demographics, medical history (including risk factors such as smoking), and a detailed family history from all of these subjects. Vital status is available through the end of 2004. For many we have some neuropsychological measures; most have an MMSE and clock drawing test, for example. The majority of subjects in our database have only one visit. However, about 1,900 of the roughly 6,400 subjects have been or are being seen longitudinally. At each visit they complete some neuropsychological testing and a neurological exam, as well as an interview to capture new medical and family history.
There are over 2,500 variables in our database, not all of which are available for each subject. To facilitate data use for research, we have put together a Summary Database which contains about 150 of the most commonly requested variables. A data dictionary describing the variables in the Summary Database is available (click here).

In addition to clinical information, we collect basic demographics, medical history (including risk factors such as smoking), and a detailed family history from all of these subjects. Vital status is available through the end of 2004. For many we have some neuropsychological measures; most have an MMSE and clock drawing test, for example. The majority of subjects in our database have only one visit. However, about 1,900 of the roughly 6,400 subjects have been or are being seen longitudinally. At each visit they complete some neuropsychological testing and a neurological exam, as well as an interview to capture new medical and family history.

There are over 2,500 variables in our database, not all of which are available for each subject. To facilitate data use for research, we have put together a Summary Database which contains about 150 of the most commonly requested variables. A data dictionary describing the variables in the Summary Database is available (click here).

Investigators interested in getting more information about the Emory Neurology Database should contact Lenora Spencer at lspenc3@emory.edu. If you would like to request some of these data for research studies or would like to contact some of these subjects for possible participation in other research studies, please fill out the appropriate request form and email it to Lenora Spencer at lspenc3@emory.edu.